When Thunder is Rumbling constantly

It’s the day after a charity football match, which was not only a 4 hour round trip away ( Thankfully my daughter drove), but was a whole afternoon of wonderful excitement ( which was an absolute delight but as always I know I will pay for it later). So when I got home yesterday, I…

Some Info for the Uninformed

Fibromyalgia is the bucket diagnosis (IMO) – used to give a name to the following list of symptoms. Fatigue Morning stiffness Tingling, pain or numbness in hands and feet Headaches, including migraines Irritable bowel syndrome Sleep disturbances/insomnia Cognitive dysfunction with thinking and memory (sometimes called “fibro-fog”) Painful periods Allodynia (Painful to be touched) Sound sensitivity,…

Evenings in your room all alone

Something people with invisible illness have in common, regardless of what illness it is; is the disbelief of those most close to you. The people around you, who you think would be most empathetic & would give you help when needed are most often the cruelest & least understanding. I think this is because they…

Of course I’m stressed, who wouldn’t be!

So this happened… Hospital Appointment, arrived early only to be told I’m booked in to see “wrong” consultant & after a 4 month wait, I’ll need to wait for another appointment. Nice receptionist felt sorry for me, went and asked “wrong” consultant to see me, as wasn’t my fault. Half hour later, told “wrong” consultant…