I want to start by saying, I really believe the people running the clinic are truly 100% convinced they are “helping”….. But a 1 size fits all type approach just doesn’t cut it. Not with us “spoonies”.
My doctor convinced me to try a “Pain Management Programme” – run by a very impressive sounding “Centre of Pain Education” at a local Hospital…
Well I’ll try anything when Im in pain & feeling about 90 years old…. So off i went, for an assessment & for the first meeting (4 months after the assessment) – At which point I didn’t go back. Here’s why.
The assessment made me feel like I was in the right place, I felt like the Psychologist was listening (you are seen by a psychologist, physiotherapist & a Nurse). A one-to-one meeting, where you discuss your problem/ illness, the how’s, why’s & everything.. It took over an hour & I felt for the first time – someone actually cares & understands. So was looking forward to the clinic.
On the day of the first clinic, I arrived, but was in the middle (week 3) of a flare – I was clutching a hot water bottle & crying in pain, couldn’t sit & felt bloody awful, BUT I had been told at the assesment, if you miss the first meeting you are thrown off the course (8-10 meetings).
There were 12 people there – all with different illnesses / disabilities, all battling pain issues.
Now anyone who knows ME (me before I started to Ghost away) knows I Give group training (sorry, Gave, I really must get used to speaking in the past tense).
I gave group training & motivational speeches etc throughout my working career.
I don’t do well actually as part of group sessions – I am loud & questioning but always articulate (sorry, I was Loud & questioning —- Blah blah blah, you get the picture).
We were seated in a semi-circle (me on my hot water bottle, now feeling bloody stupid) & proceeded to introduce ourselves & state (for the group) our disability etc….
(I should’ve got up & ran out, BUT getting up & hobbling was even out of the question)…..
Once the sob stories were out of the way (mine included, which I hasten to add was swiftly put to bed with a ” I have recently been diagnosed with Fibromyalgia but don’t believe I have it, However I am worse today as I’ve slipped a disc”), We were told what to expect.
Apparently over the course of these group sessions, we are going to be “taught” how to understand our pain………………………………………………………………………..
I will leave this blog there & continue later –
One word sums up my thoughts – Condescending