Pain Management Clinic Fiasco

I want to start by saying, I really believe the people running the clinic are truly 100% convinced they are “helping”….. But a 1 size fits all type approach just doesn’t cut it. Not with us “spoonies”. My doctor convinced me to try a “Pain Management Programme” – run by a very impressive sounding “Centre of…

HOW is this possible?

I promise I wont do political rants on here (as if I started, I don’t think I’d stop) BUT this has got to be said. David Cameron & his wife are both Millionaires in their own rights. They both come from extremely wealthy families (of millionaires) also. However, when their son was sadly born with a…

Life as a Spoonie

So. Here I am – Spoonie – Fighting against this poxy diagnosis & the dismissive medical profession & now finding a whole online swath of fellow “ghosts” who like me have faded away…..